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Save the Date: Meet the LightHouse CEO, January 27

Save the Date: Meet the LightHouse CEO, January 27

The LightHouse Board of Directors warmly invites all LightHouse Community members to a reception to welcome and celebrate new LightHouse CEO, Sharon Giovinazzo on January 27.
 
After working remotely for 26 months, LightHouse San Francisco employees returned to the office last May. Now it’s time to have our first gathering for LightHouse students and community members in San Francisco since early 2020.
 
There’s no better time than now, with new LightHouse leadership, to reconnect with our community right at our San Francisco headquarters. “After a two-year pause in those in-person touchpoints, we’re eager to bring our community together again. Having a new CEO is icing on the cake,” says Development Project Manager and Welcome Reception organizer Carin Elam.
 
Sharon comes to the LightHouse with nearly 25 years of experience in the blindness field, most recently as President and CEO of World Services for the Blind. Since she joined LightHouse in October, Sharon has been doing a listening & learning tour to learn about the unique needs of the blindness community in the San Francisco Bay Area and Northern California.
 
What: LightHouse CEO Welcome Reception
Where: Friday, January 27, from 4:00 pm to 6:00 pm
When: LightHouse San Francisco at 1155 Market, St. 10th Floor
RVSP: To Carin Elam at CElam@old.lighthouse-sf.org or 415-694-7681
 
Stay tuned for more information about the reception as we get closer to the date.
 
We hope to see you there!

EHC Online Holiday Concert is This Thursday, 12/15

EHC Online Holiday Concert is This Thursday, 12/15

For the third year in a row, friends and supporters of Enchanted Hills Camp (EHC) wish to show their appreciation for the LightHouse community by hosting a free virtual EHC Alumni holiday concert. Musicians who have attended camp sessions, music camp or been a camp counselor or volunteer will join LightHouse and EHC staffers to celebrate the spirit of EHC past, present and future.
 
This year’s performers are Hanna Clemenson, Christina Daniels, Derek Dittmar, Shane Dittmar, Rachael Grider, Ellie Kneer, Jackie Nguyen Mariana Sandoval and Masceo Williams.
 
Camp Director, Tony Fletcher says, “When we enter the cold and dark days of late fall and prepare for winter, many of the alumni of EHC truly look forward to any opportunities for us to gather and celebrate one of our favorite locations on earth. One of the special gatherings is the Virtual Holiday Concert. All the performers have deep connections to EHC as staff members, and for many, as former campers. This is a show built around gratitude. This year we focus on saying thank you to the many generous donors that supported Giving Tuesday for the LightHouse’s Little Learners Program that uses Enchanted Hills for a family camp weekend.
 
“We hope listeners will enjoy not only the music, but also the chance to hear and see the performers that have been their counselors and area leaders at EHC over the years.”
 
What: EHC Virtual Alumni Holiday Concert
When: Thursday, December 15, from 5:00 pm to 7:00 pm Pacific
Where: Enchanted Hills Camp Facebook page, no Facebook account is necessary to view the live-streamed concert
 
We can’t wait to share holiday music with you on the 15th!

LightHouse Students Attend an Accessible Performance of FROZEN

LightHouse Students Attend an Accessible Performance of FROZEN

On December 8, 28 LightHouse community members attended a performance of the musical FROZEN at the Orpheum Theatre in San Francisco. The performance included a preshow experience and live audio description.
 
The outing was spearheaded by LightHouse Adult Programs Coordinator, Maia Scott, who gave a recap.
 
“The whole experience was a joyous intergenerational community gathering. My mom was with me, and she agreed. This is my job; I get to take people out to play!”
 
And play they did! Maia described the preshow experience.
 
“We had the chance to go in at 5:30 pm, before the doors opened to the public, to enjoy the lounge space. A show manager, who is in charge of everything that happens offstage, shared some facts. It takes 20 semitrucks to move Frozen from city to city. There’s also a curtain of crystals that has a giant chart that covers the whole stage to align everything so that the crystal curtain hangs right. It weighs 2,000 pounds!
 
“The show manager also brought out some wigs worn in the show. There’s more than 90 and one of the main characters, Anna, wears six of them. These are the types of things we wouldn’t necessarily get in audio description.”
 
Speaking of the audio description, it was provided by local company Gravity Access Services.
 
“I really liked Gravity Access’ approach,” said Maia. “The audio describer and another ally come into the audience preshow to ensure everyone knew how to use their receiver headsets. This also gave people a chance to hear the voice of their audio describer before the show, so that they hear a familiar voice describing the show and not just a mystery person up in the top box.”
 
15 people used audio description, with the youngest being just five years old.
 
LightHouse student, Carol, spoke of the experience.
 
“It was phenomenal. I am truly appreciative of all the work Maia, as well as the Orpheum staff and the cast coordinator of the show put into this. I thoroughly enjoyed myself and I’m looking forward to another social outing with other LightHouse attendees.”
 
Maia also summed up her feelings.
 
“I love that Gravity Access has a very personable approach to audio description. I love that they have a relationship with LightHouse and will be working with us on student programming in the year to come.”  

Just What Does Working with Our Little Learners Look Like?

Just What Does Working with Our Little Learners Look Like?

A little girl wearing glasses plays on a toy piano

Our Little Learners staff serve blind babies, from ages 0 to 3, and their families. We want to tell you a bit more about the amazing work they do.
 
Early Childhood Blind & Low Vision Specialists are out in the community, providing services to blind babies and their families in their homes, and community areas such as parks, libraries, and daycare. They often go to the ophthalmologist with families to help them understand what the doctor is saying and make sure they get their questions answered. They discuss with parents what their baby’s vision diagnosis and what for the baby’s education. 
 
The Specialist is also part of the baby’s education team. Each baby has a Individual Family Service Plan that outlines all the services the baby is receiving, assessments that have been done, and the outcomes the education team will be working on during each six-month period. The Specialist identifies the next steps for a baby to work on. For example, if a baby is working with a Speech Therapist, the Specialist may determine the baby needs high-contrast icons to work with or tactile objects.
 
Our Regional Coordinators cover four regions: North, East, South and Central Valley. Each region has a Regional Center with its own way of doing things.
 
The Regional Coordinator is also a blind and low vision specialist. They lead the Little Learners staff who work in that region, coordinate referrals that come in, track caseloads, and work with school districts.
 
Some of the most crucial work of the Regional Coordinator includes direct outreach in the local community by attending local events such as community roundtables. They build relationships with the people who refer blind babies to the Little Learners program, such as doctors.
 
Overseeing the team is our Program Director Pam Chapin who is herself a blind and low vision specialist. Pam tracks state regulations, evaluates areas that need services, determines any staffing changes that are needed and communicates with community partners and other LightHouse departments for programming.
 
Pam also happens to be the Regional Coordinator for the South Bay and had this to say about serving in that role:

“I like that I still work with families. I think it keeps me connected to what we’re doing, and it keeps my skills honed. The work is why we’re here.”

Make a Giving Tuesday Donation

Little Learners Mom: Maisara’s Story

Little Learners Mom: Maisara’s Story

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Maisara:

“My son was only several months old when he was diagnosed with a visual impairment. I was devastated when I found out and feeling hopeless. Then I got connected to Little Learners Specialist Elizabeth. Elizabeth taught me helpful skills like baby massage to help my son with his body awareness – this also helps me bond with him as well. When Elizabeth comes to our home, she does fun activities with my son that engages and strengthens his fine motor skills and sensory awareness.

“In addition to our home sessions, after every ophthalmology appointment my son has, Elizabeth goes over the doctor’s summary report with me and explains what the doctor is saying since I don’t understand the medical terms. She also assessed our home environment and helped us make it more accessible for my son.

“I don’t know what I’d do without Elizabeth! She knows when I am feeling overwhelmed and helps bring a sense of calmness and peace to me. Her insight, advice, and expertise are invaluable. My family is so lucky to be able to receive these services from LightHouse Little Learners to help us navigate life and figure things out for my son and our family.”

Make a Giving Tuesday Donation

Little Learners Mom: Jackie’s Story

Little Learners Mom: Jackie’s Story

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Jackie:

“My 16-month-old son was born with bilateral microphthalmia and was diagnosed recently with optic nerve hypoplasia. We are so very grateful for Little Learners and our LL Specialist Kristi, who has pretty much become part of our family. My son loves Kristi and when he hears her voice, he gets very excited.

“The medical appointment support that Kristi provides is so important. Kristi asks questions that I forget to ask (or don’t know to ask) during my son’s ophthalmology appointments. She also provides me with helpful resources such as a beginner’s guide for parents about learning Braille as well as raising a child who has a visual impairment.

“My son and I look forward to the weekly Little Learners Sensory Playgroup Kristi leads which features different topics and activities such as body awareness through music and movement, creating a Braille cell by placing eggs into a muffin tin, and exploring concepts of fast and slow movement and sound by comparing different sound shakers. In addition to being so much fun, the Little Learners Playgroup has been a source of additional support for me as I have gotten to meet other parents who share a similar journey of raising a child who is blind or has low vision. Kristi has taught me how to best support my son as he learns about the world around him and has shown me strategies and tips on how to motivate him.”

Make a Giving Tuesday Donation

Little Learners Mom: Meg’s Story

Little Learners Mom: Meg’s Story

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Meg:

“Our 18-month-old daughter has CHARGE syndrome and we got connected to LightHouse Little Learners through our local regional center. Having a child who has a visual impairment and several disabilities, my husband and I had no idea how to help our daughter or how her growth and development would be impacted.

“Our Little Learners Specialist Gail has helped our child and our family so much that we consider her our guardian angel. She partners with our daughter’s Physical Therapist and makes recommendations about play-based activities that will improve her visual development. We were originally told by the doctor that our daughter basically doesn’t have an optic nerve and that was terribly difficult to hear.  But Gail was very encouraging and has so much knowledge and experience from her decades of working with young children who are blind or have low vision. She gave me and my husband tips and suggestions on how to help our daughter learn, play and thrive. 

“Gail gives us peace of mind and is an incredible partner to help us navigate this journey with our daughter.  Since Gail has been working with our daughter, she is now able to use her existing vision to see things, do things and reach for her toys and other objects.  Having Gail in our corner to educate us, empower us , and encourage us has been life-changing.  My family is so fortunate to be able to receive these services from LightHouse Little Learners to help us navigate life and figure things out for our daughter and our family. ­Little Learners Mom Meg”

Make a Giving Tuesday Donation

Little Learners Mom: Amalia’s Story

Little Learners Mom: Amalia’s Story

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Amalia:

“Our daughter was diagnosed with Optic Nerve Hypoplasia and we got connected to Little Learners through the regional center. Our family has been very grateful for the services and support we have received from our Little Learners Specialist Cristina. Cristina has taught me and my husband how to help our toddler discover the world around her by making sure our home environment was set up appropriately and how to engage with her through tactile and sensory activities. Cristina would also go with us to doctor’s appointments to help us understand what the doctor was telling us about our daughter’s diagnosis and treatment.

“Before being in the Little Learners program, our daughter wasn’t grabbing or holding onto objects, we couldn’t get her to look at anything, and she would cry a lot. With Cristina’s expert guidance and caring support, our daughter is developing so well and doing so many things nowadays. She is very attentive, very happy, very curious, looks at people and objects, turns the pages in her books, and tries to do a lot of things with her hands. We are so grateful to be in the Little Learners program and especially grateful for Cristina.”

Make a Giving Tuesday Donation

Little Learners: Mom Amanda and Dad Hunter’s Story

Little Learners: Mom Amanda and Dad Hunter’s Story

 

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Amanda and Dad, Hunter:

“Our toddler has minimal vision and wears a pacemaker, so having our Little Learners Specialist Jeri in our lives has been not only life-changing but life-saving. Jeri helps us navigate the overwhelming at times and celebrates the triumphs with us at other times. Jeri’s warm and comforting presence, combined with her guidance and support makes us feel like everything is all-doable.

“Having Jeri’s decades-long expertise, knowledge and experience helping young children who have a visual impairment has been a game-changer. We have learned so much about how our daughter’s vision loss impacts her growth and development. Jeri has also taught us how to be our daughter’s advocate with the medical and educational systems to ensure that our child accesses the best possible care and services.

“Jeri also coaches us on how to motivate our daughter to try new things, new activities and new experiences like Little Learners Family Camp held at LightHouse’s Enchanted Hills Camp for the Blind in Napa. The population of families raising a child who is blind or visually impaired is not a large one so Little Learners Family Camp was such an important experience for our family. We got to meet other families and bond over challenges overcome, successes celebrated and lessons learned. We especially loved getting to talk with camp counselors who shared with us the blindness services/resources they benefitted from.

“Little Learners is truly a fantastic program for infants and toddlers, but we have to tell you that it is truly the best resource for parents!”

Make a Giving Tuesday Donation

Little Learners Mom: Amy’s Story

Little Learners Mom: Amy’s Story

For this year’s Giving Tuesday, LightHouse is raising money for our Little Learners program, which serves blind and low vision children from ages 0 to 3. We’re sharing stories sent to us by families who have been served by the Little Learners program.

Here is a story from Little Learner’s Mom, Amy:

“Our son was diagnosed with achromatopsia as an infant. His visual impairment is a genetic disorder in which the cones of his retina are not functioning so it makes him very photophobic. Our son also has nystagmus (abnormal eye movement), no color vision and very little depth perception.

“Our family is so lucky to receive services from Little Learners! Our Little Learners Specialist Gail has experience working with young children who have achromatopsia, which is awesome because it’s such a rare condition. Gail provides us with support at our son’s ophthalmologist appointments- she asks questions that we wouldn’t know to ask. She also helped us with getting our son the right type of glasses and tints.

“Our world is so color-based and Gail has helped us understand that even though our son knows the names of colors, he doesn’t actually see them, that he only sees shades of gray. Since our son doesn’t see depth very well, things like stairs and curbs are very challenging to navigate so Gail taught him to tap with his toes so that he will know there’s a step.

“In addition to teaching my husband and I how to help our son learn about the world around him, Gail has dropped off toys and games that she thought would be helpful with strengthening our son’s vision. She gives us wonderful ideas, great advice and really empowers us to advocate for the best possible care and services for our child within the medical and educational systems”

Make a Giving Tuesday Donation